HIV/AIDS, To Disclose or not to Disclose: That is the Question

  • Andra Le Roux-Kemp Stellenbosch University
Keywords: HIV/AIDS, disclosure, non-consensual disclosure, confidentiality, compulsory HIV-testing, HIV-status, unauthorised blood tests

Abstract

The systemic consequences of the HIV/AIDS pandemic in South Africa are evident not only in demographic, economic and social trends, but also on a micro- and personal level, where they are devastating. Those infected with HIV are often the target of intense discrimination and discriminatory behaviour including rejection, isolation and violence. It is especially because of these macro- and micro effects associated with HIV/AIDS that the highest regard should be placed on the fundamental rights of infected individuals - specifically the rights to privacy and bodily and psychological integrity - when determining if the disclosure of such persons’ status is necessary and justified. The primary aim of this article is to critically consider and describe the different contexts in which the disclosure of a person’s HIV/AIDS status will be relevant. The position of various role players in the economy, in the criminal justice system and in the healthcare arena will be considered with reference to relevant legislation, case law, guidelines and ethical codes. It will be clear from the discussion that no simple or single right answer exists. A patient-oriented approach sensitive to public health goals and objectives and based on human rights principles is advocated in this article.

    

References

Bibliography

Adedimeji 2010 SAHARA J

Adedimeji A "To Tell or Not to Tell: Managing HIV/AIDS Disclosure in a Low Prevalence ocntext" 2010 SAHARA J Jul 16-23

Bedward 1990 U Ill L Rev

Bedward RR "AIDS Testing of Rape Suspects: Have the Rights of the Accused Met Their Match?" 1990 U Ill L Rev 347-374

Cameron 2006 Stell L R

Cameron E "Legal and Human Rights Reponses to the HIV/AIDS Epidemic" 2006 Stell L R 37-46

Consten et al 1995 AIDS

Consten EC et al "A Prospective Study on the Risk of Exposure to HIV During Surgery in Zambia" 1995 AIDS 585-588

De Bruyn 2008 Meditari Accountancy Research

De Bruyn R "A Proposed Reporting Framework for HIV/Aids Disclosure by Listed South African Companies" 2008 Meditari Accountancy Research 59-78

Falk-Kessler, Barnowski and Salvant 1994 Am J Occup Ther

Falk-Kessler J, Barnowski C and Salvant S "Mandatory HIV Testing and Cccupational Therapists" 1994 Am J Occup Ther 27-37

GRI Reporting Guidance on HIV/AIDS: A Resource Document

Global Reporting Initiative Reporting Guidance on HIV/AIDS: A Resource Document (GRI February 2003), accessible at http://bit.ly/ZwyIxe

HPCSA Booklet 12

Health Professions Council of South Africa Guidance for Good Practice in Health Professions: Ethical Guidelines for Good Practice with Regard to HIV - Booklet 12 2nd ed (HPCSA Pretoria 2007)

HPCSA Booklet 14

Health Professions Council of South Africa Guidance for Good Practice in Health Professions: Confidentiality: Protecting and Providing Information - Booklet 14 (HPCSA Pretoria 2002)

Knobel 1997 THRHR

Knobel JC "HIV-toetse, Toestemming en Onregmatigheidsbewussyn" 1997 THRHR 533-536

Jacobs, Stoop and Van Niekerk 2010 PELJ

Jacobs W, Stoop P and Van Niekerk R "Fundamental Consumer Rights under the Consumer Protection Act 68 of 2008: A Critical Overview and Analysis" 2010 PELJ 301-406

Le Roux-Kemp Law, Power and the Doctor-Patient Relationship

Le Roux-Kemp A Law, Power and the Doctor-Patient Relationship: A Legal Perspective (VDM Saarbrücken 2011)

Maile 2003 Acta Academia

Maile S "Managing the Disclosure of School Learners' HIV Status" 2003 Acta Academia 185-204

Maile 2003 SAJE

Maile S "Legal Aspects of the Disclosure of HIV Serostatus by Educators" 2003 SAJE 78-83

Maile 2004 Africa Education Review

Maile S "HIV/AIDS and Legal Rights: When the Educator's Rights Collide with Learners' Rights" 2004 Africa Education Review 113-127

Makoae and Jubber 2008 SAHARA J

Makoae MG and Jubber K "Confidentiality or Continuity? Family Caregivers’ Experiences with Care for HIV/AIDS Patients in Home-based Care in Lesotho" 2008 SAHARA J 36-46

McQuoid-Mason 2007a SAMJ

McQuoid-Mason D "Routine Testing for HIV – Ethical and Legal implications" 2007 SAMJ 416-420

McQuoid-Mason 2007b SAMJ

McQuoid-Mason D "Disclosing the HIV Status of Deceased Persons – Ethical and Legal Implications" 2007 SAMJ 920-923

Mokoaleli-Mokoteli and Ojah 2010 African Finance Journal

Mokoaleli-Mokoteli T and Ojah K "Voluntary Disclosure of Socio-economic Issues by JSE Listed Companies: The HIV/AIDS Example" 2010 African Finance Journal 1-26

Moodley et al 2006 SAMJ

Moodley K et al "Paediatric HIV Disclosure in South Africa – Caregivers’ Perspectives on Discussing HIV with Infected Children" 2006 SAMJ 201-203

Myburgh 2001 Meditari Accountancy Research

Myburgh JE "The Informativeness of Voluntary Disclosure in the Annual Reports of Listed Industrial Companies in South Africa" 2001 Meditari Accountancy Research 199-216

Naeem-Sheik and Gray 2005 South African Journal of HIV Medicine

Naeem-Sheik A and Gray G "HIV Disclosure in Children" 2005 South African Journal of HIV Medicine 46-48

Neethling 2008 SALJ

Neethling J "The Right to Privacy, HIV/AIDS and Media Defendants" 2008 SALJ 36-46

Pfaff 2004 SA Family Practice

Pfaff C "Telling a Child He is HIV Positive" 2004 SA Family Practice Oct 35-40

Roehrs 2009 SALJ

Roehrs S "Privacy, HIV/AIDS and Public Health Interventions" 2009 SALJ 360-397

SALC Working Paper 58

SALC Working Paper 58 (Project 85): Aspects of the Law Relating to Aids: HIV/AIDS and Discrimination in Schools (SALC Pretoria 1995)

SALC Discussion Paper 73

South African Law Commission Discussion Paper 73 (Project 85): Aspects of the Law Relating to AIDS: HIV/AIDS and Discrimination in Schools (SALC Pretoria 1996)

SALC HIV/AIDS Discrimination in Schools

South African Law Commission Project 85: Aspects of the Law Relating to AIDS: Third Interim Report - HIV/AIDS Discrimination in Schools (SALC Pretoria 1998)

SALC Pre-employment HIV-testing

South African Law Commission Project 85: Aspects of the Law Relating to AIDS: Second Interim Report - Pre-employment HIV-testing (SALC Pretoria 1998)

Scott 2007 Stell L R

Scott S "Liability for the Mass Publication of Private Information in South African Law: NM v Smith (Freedom of Expression Institute as Amicus Curiae)" 2007 Stell L R 483-494

Szabo et al 2009 SAMJ

Szabo CP et al "Surgeons and HIV: South African Attitudes" 2009 SAMJ 110-113

Van Wyk 1994 THRHR

Van Wyk CW "Vigs, Vertroulikheid en ’n Plig om In te Lig?" 1994 THRHR 141-147

Register of cases

Allpass v Mooikloof Estates (Pty) Ltd t/a Mooikloof Equestrian Centre 2011 2 SA 638 (LC)

C v Minister of Correctional Services 1996 4 SA 292 (T)

Hoffmann v South African Airways 2000 2 SA 628 (W)

Hoffmann v South African Airways 2001 1 SA 1 (CC)

Irvin and Johnson Limited v Trawler and Line Fishing Union 2003 24 ILJ 565 (LC)

Jansen van Vuuren v Kruger 1993 4 SA 842 (AD)

Joy Mining Machinery a division of Harnischfeger (South Africa) (Pty) Limited v National Union of Metal Workers of South Africa (NUMSA) 2002 ZALC 7

NM v Smith 2007 5 SA 250 (CC)

Perreira v Buccleuch Montessori Pre-school and Primary (Pty) Ltd 2003 ZAGPHC 1

Spendiff v East London Despatch Ltd 1929 EDL 113

VRM v Health Professions Council of South Africa 2002 ZAGPHC 4

X v Y 1988 2 All ER 648 (QB)

Register of legislation

South Africa

Births and Deaths Registration Act 51 of 1992

Children’s Act 38 of 2005

Child Care Act 74 of 1983

Constitution of the Republic of South Africa, 1996

Consumer Protection Act 68 of 2008

Criminal Law (Sexual Offences and Related Matters) Amendment Act 32 of 2007

Employment Equity Act 55 of 1998

National Health Act 61 of 2003

United States

Colorado Revised Statutes: Criminal Code

Texas Code of Criminal Procedure

The Penal Code of California

Register of government publications

Code of Good Practice on Key Aspects of HIV/AIDS and Employment, accessible at http://bit.ly/X8P9Do

Gen N 1926 in GG 20372 of 10 August 1999 (National Policy on HIV/AIDS for Learners and Educators in Public Schools, and Students and Educators in Further Education and Training Institutions)

Institute of Directors in Southern Africa King Report on Governance for South Africa – 2002 (IoD Parklands 2002)

Register of internet sources

Avert Date unknown http://bit.ly/16pKTCh

Avert Date unknown South African HIV & AIDS Statistics http://bit.ly/16pKTCh [date of use 19 Feb 2011]

Avert Date unknown http://bit.ly/XQn7tr

Avert Date unknown Sub-Saharan Africa HIV & AIDS Statistics http://bit.ly/XQn7tr [date of use 19 Feb 2011]

Avert Date unknown http://bit.ly/13IroqU

Avert Date unknown Worldwide HIV & AIDS Statistics http://bit.ly/13IroqU [date of use 19 Feb 2011]

UNAIDS 2010 http://bit.ly/13Ipzu8

UNAIDS 2010 UNAIDS Report on the Global AIDS Epidemic http://bit.ly/13Ipzu8 [date of use 19 Feb 2011]

Published
2017-04-26
How to Cite
Le Roux-KempA. (2017). HIV/AIDS, To Disclose or not to Disclose: That is the Question. Potchefstroom Electronic Law Journal, 16(1), 200-239. https://doi.org/10.17159/1727-3781/2013/v16i1a2309
Section
Articles